I want to update you on my niece Callie. She is back home now and doctors are determining what medication will address her seizures. She is getting back to normal, but the medication she is currently trying makes her a little sleepy.

This has not interfered however with her need to watch Sesame Street, we can all relate to that. No matter how sick we may be, or what medication we may be put on, nothing will get in the way of our favorite show. One eye could be half closing, head may start bobbing but this is Sesame Street…”I…must…stay….awake.”

Callie was playing again with a set of letters which she hands off to her Mum so as they can arrange words. Though this is helping her learn, the joy I’m sure is being home, surrounded by her things and just spending time with Mum. In April, she will be making her way to BC Children’s Hospital for check ups, the family will take this opportunity to visit and shower her with more love and gifts. Coincidentally, Callie’s original birth date was set for April, so while she is here we will break out the birthday gifts. What child wouldn’t love two birthdays a year?

I have bought her Sesame Street’s Elmo’s Sunny Days Building Set, it has lots of features that help in a child’s development. Beyond the educational merits, it was Elmo and Ernie that had me smiling and I won’t have to clean up the mess created.

I phoned my sister to get today’s update. While my sister tries to get a nap and Callie tries to fight nap time, I can’t help but think about all those mother’s out there who can’t remember the last time they did something just for themselves. Sleep a luxury, privacy long lost, manager of all things, feeling like they are mastering none. Parenting is an incredibly rewarding and challenging job; but is made even more so when you are a parent of a special needs child. Those parents are the true champions.

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